Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry
Centers for Disease Control - NCBDDD
About this archived opportunity
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Historical details
- Status
- Closed
- Deadline
- March 16, 2026
- First captured
- December 12, 2025
- Award
- $166,428 - $488,571
- Publisher reference
- 361002
Eligibility: Special district governments, For profit organizations other than small businesses, State governments, County governments, City or township governments, Native American tribal governments (Federally recognized), Private institutions of higher education, Independent school districts, Public and State controlled institutions of higher education, Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Small businesses
This opportunity has closed
Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry
by Centers for Disease Control - NCBDDD
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